Live Like Lou Center Events

Events in 2016

May 4 – Anne Lewis Advocacy and Humanitarian Award honoring Live Like Lou 

Suzanne, Abby, and Patrick Alexander







The award is named for one of the region's most prominent champions for ALS patients and their families. Anne Lewis has been deeply affected by ALS, as many people in her life have suffered from the disease, including her stepson Mathew. His passing in 2004 inspired the Lewis family to support patient care and help search for treatment and an eventual cure. In 2008, Anne Lewis, who chairs the Oxford Development Corporation, was instrumental in securing more than $500K in state funding for The ALS Association. In recognition, she was honored with the inaugural Anne Lewis Humanitarian Award in 2010.  Her advocacy has continued, resulting in The ALS Association being included in a line item in every Pennsylvania budget every year since 2012.

Suzanne Alexander and her children, Abby and Patrick, accepted the award, given for "Live Like Lou's initiatives [that] exemplify an unwavering commitment to ALS patients and families. Founded by Neil and Suzanne Alexander following Neil's diagnosis with ALS, Live Like Lou's generous philanthropy has had a powerful impact on those living with ALS and has made possible a new, state-of-the-art ALS research center in Pittsburgh."

In the news: UPMC: Local ALS Association Honors Live Like Lou, Raises Money for ALS Research at Pitt's Brain Institute

June 4 – Live Like Lou Swim-a-Thon for kids and adults, Community Swim Club in O’Hara Township

Live Like Lou Swim-aThon










Update: Read about the event and see photos here.

Suzanne says: Neil was a FISH - and even after being diagnosed with ALS was happiest beachside or poolside. He was so honored with the Live Like Lou Swim-a-thon - dreamed up by friends in our community and raising more than $10,000 to date for Live Like Lou (that's a lot of laps)!!!

Please join us for the Third Annual Live Like Lou Swim-a-thon on Saturday, June 4 - and swim, help count laps or sponsor a swimmer - or you can just eat the extra Cheez-its and donuts stacked up along the deck. Led by Katie Kenyon, Sia Beasley and Scott Sterrett and hosted by the Community Swim Club in O'Hara Township, everyone is welcome! Adults in the pool on from 8 to 9 am and kids from 9:15 am to 10:15 am. Funds raised by per-lap pledges or swimmer sponsorships. Light breakfast, ONWARD T-shirts, prizes and raffles galore! Volunteer or pre-register for the event by emailing

ONWARD - supported by awesome people who say "just keep swimming" over and over and over again!

July 18 – Live Like Lou Golf Tournament – hosted by Hefren-Tillotson at Butler Country Club

August 27 – Pittsburgh Walk to Defeat ALS® – sponsored by the ALS Association, view the walk details here. Want to join or donate to the Brain Institute's team? Support the team here!

CANCELLED (see update, below):  September 10 – 5th Annual Live Like Lou 52-Mile Bike Ride, Pittsburgh Waterfront/Great Allegheny Passage

Update from The 5th Annual LiveLikeLou Bike Ride has been cancelled due to the Pitt/Penn State Football Game which was scheduled right on top of our event, rendering too many ride participants unable to choose.... haha we understand - these two teams only meet every 16 years or so! After several years, some WONDERFUL memories and more than $100k - it's been a Great RIDE! The Good News...a Plan B is being announced shortly - so don't let those bike-riding butts get too soft! And the Heart-Warming news... loving friends and loyal LiveLikeLou supporters Steve Yoset and Scott Drabert are riding anyway! haha! They will be out there, September 10th, bright and early, rain or shine, riding 52 miles ANYWAY! They are accepting donations at www.livelikelou.ord/donate/ - choose the Pittsburgh Foundation options and mark as "bike ride". Thank you for supporting them and their quest to Leave ALs Better Than We Found it! Let me know if you'd like to join them and thank you for your loving support!! Also thanks to Lynn Hyde, Rob Rodgers, Allison Brigid Whitney and Joe Yezovich for your years of support and not letting this hold us back!

ONWARD! With determination to ride our butts off for ALS!

October 2 – Carnegie Mellon Donut Dash for kids and adults – sponsored by Peoples Gas (run-a-mile-eat-6-donuts-run-a-mile)

Donut Dash raised $175K. See story here.

October 7 to 16 – Live Like Lou Hockey Tournament – hosted by Nash Wedner for his Bar Mitzvah

December – Fox Chapel Area School District Fundraisers and Telethon